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Life Events Andrew in hospital, expects laptop access on night of 5/13
- Thread starter Toshiro
- Start date
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- Tags
- illness life events
Andrew
SARPiverse Culture Dreamer
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Update - Cleared Day 40 (40 days since transplant) It has been a while since I updated you all.
Things are getting better slowly, but have not been free of complications. So far all signs show the stem cell transplant worked. My blood type has shifted to match my donor's (from O negative to O positive) and they have confirmed Graft vs. Leukemia effect which has confirmed the donor cells have killed off residual disease. So far there are no signs of acute GVHD of any significance.
The biggest hurdle at the moment is the immunosuppression drugs which are designed to prevent rejection and GVHD itself, it seems to be a twice a week struggle at my outpatient clinic appointments to get these drug levels in check, which causes things like skin rashes, itching, the feeling of my own tears burning my eyes and other what I consider to be minor things that go along with the already existant aches and pains of a ravaged body. I keep dropping weight at an almost uncomfortable rate (as some of you know before all of this I was a fairly fluffy guy, and thats melting ...not all a bad thing, but the rate is a bit disturbing).
Yesterday it was confirmed I've contracted a virus, and they've put me on a different anti-viral drug (one not covered by insurance/Canadian health care) which cost me a whopping sticker price of $1600.00. My savings account is crying but such is the fun of being medically messed up, on disability and fighting what I am fighting. Anyway, hopefully, the medicine will work, I certainly feel better with my first few doses of it. Will know more Friday.
My immune system is slowly rebuilding, I spend a lot of my time sleeping. Anyway....It is my hope to return to SARP in the next 30-60 days depending on how recovery progresses. "Day 100" is an important checkpoint in recovery from an allogeneic unrelated transplant, it will also mark the day that I ring the bell at the clinic if I am still Leukemia-free.
Anyway, I hope you are all well. I still have discord on my phone and laptop so feel free to drop me a line. To those like @Toshiro @Wes , I can't wait to get back to Katsuko's story and continue where we left off.
Things are getting better slowly, but have not been free of complications. So far all signs show the stem cell transplant worked. My blood type has shifted to match my donor's (from O negative to O positive) and they have confirmed Graft vs. Leukemia effect which has confirmed the donor cells have killed off residual disease. So far there are no signs of acute GVHD of any significance.
The biggest hurdle at the moment is the immunosuppression drugs which are designed to prevent rejection and GVHD itself, it seems to be a twice a week struggle at my outpatient clinic appointments to get these drug levels in check, which causes things like skin rashes, itching, the feeling of my own tears burning my eyes and other what I consider to be minor things that go along with the already existant aches and pains of a ravaged body. I keep dropping weight at an almost uncomfortable rate (as some of you know before all of this I was a fairly fluffy guy, and thats melting ...not all a bad thing, but the rate is a bit disturbing).
Yesterday it was confirmed I've contracted a virus, and they've put me on a different anti-viral drug (one not covered by insurance/Canadian health care) which cost me a whopping sticker price of $1600.00. My savings account is crying but such is the fun of being medically messed up, on disability and fighting what I am fighting. Anyway, hopefully, the medicine will work, I certainly feel better with my first few doses of it. Will know more Friday.
My immune system is slowly rebuilding, I spend a lot of my time sleeping. Anyway....It is my hope to return to SARP in the next 30-60 days depending on how recovery progresses. "Day 100" is an important checkpoint in recovery from an allogeneic unrelated transplant, it will also mark the day that I ring the bell at the clinic if I am still Leukemia-free.
Anyway, I hope you are all well. I still have discord on my phone and laptop so feel free to drop me a line. To those like @Toshiro @Wes , I can't wait to get back to Katsuko's story and continue where we left off.
I'm very glad to hear the update and I'm really glad that you're recovering. You're such a strong dude having been through all this and I am super proud of you. Keep going and being amazing. We certainly haven't forgotten you or your characters and whenever you feel ready you're welcome back. In the meantime I will keep sending you little things I'm working on and art I made.
Charmaylarg Dufrain
🎖️ Game Master
There ye go, Progress!
And all that treatment must have been harsh on ye and im sure exhausting!
As for your weight thats to be expected. Your body is undergoing a lot right now and is burning fat and famine tissue to give your body more energy to boost its immune system and natural functions to fight off the foreign invaders that are these medicines, treatments, radiations, etc. Your body doesn't know they are there to help right away after all and will attack any outside agent good or bad.
And all that treatment must have been harsh on ye and im sure exhausting!
As for your weight thats to be expected. Your body is undergoing a lot right now and is burning fat and famine tissue to give your body more energy to boost its immune system and natural functions to fight off the foreign invaders that are these medicines, treatments, radiations, etc. Your body doesn't know they are there to help right away after all and will attack any outside agent good or bad.
SageShooter
🎨 Media Gallery
Andrew! Awesome to hear from you buddy! I'm glad things are progressing toward a better position it seems and can't wait till you get back here! I've been itching to use Eri and can't wait to pick the story up again, but what's important is you're good and healthy of course!
Andrew
SARPiverse Culture Dreamer
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My Day 100 is on November 3rd and my full admission into the survivorship program will be on November 14th. It is my intention to fully return around that time possibly even before. Thank you everyone for your support!
Glad to hear your recovering well ! Looking forward to meeting you in chat when your back 
paladinrpg
Inactive Member
Star Army has a bright future indeed with you back, Andrew. My prayers with you as you conquer the road to recovery one day at a time.
Yoshiro Tanaka
Well-Known Member
HUZZAH! Good to hear Andrew! Told ya you were gonna beat it in the face!
Toshiro
Inactive Member
News update: I've just talked with Andrew, and he mentioned that things are going well. Last Tuesday was his last steroid treatment, and he is having a bone marrow biopsy next Tuesday (November 5th) to check on things. If things go well with the biopsy, he enters survivorship around November 15th. That means he won't have to go to the clinic as regularly and this is also the rough time he expects to return to SARP. I won't make promises for him, so don't hold him to the exact date on my account, but things are looking up!
Andrew
SARPiverse Culture Dreamer
Staff Member
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🌸 FM of Yamatai
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🎖️ Game Master
Discord Booster
Thanks, Toshi for relaying
To be more specific, they rescheduled a few procedures otherwise I would have been back tomorrow. The last appointment date will be the 29th, so hopefully, things will clear up quick. Regardless love you guys and thank you for the support!
To be more specific, they rescheduled a few procedures otherwise I would have been back tomorrow. The last appointment date will be the 29th, so hopefully, things will clear up quick. Regardless love you guys and thank you for the support!
SOON
HE BACC
HE BACC
